TikTok creator Hannah Campbell has shared the heartbreaking news of her 10-month-old daughter’s passing. Elliana Rose, who had a rare genetic skin disorder called junctional epidermolysis bullosa (JEB), died peacefully on April 7.
“In loving memory of Ellie,” Campbell posted on TikTok. “She passed peacefully last night, wrapped in love.” In another message, she added, “I’m heartbroken, and I’m angry. No child should have to endure what she did. EB stole her from us.”
Elliana was diagnosed at just two weeks old. JEB causes fragile skin that blisters easily—even internally. “It was really sad to hear that she probably won’t live past her first year of life,” Campbell said in an earlier interview.
Despite the immense challenges, Campbell used her platform to raise awareness. “Every child with EB deserves a future without pain,” she once shared. Her GoFundMe, Elliana’s Hope for Healing, has raised over $13,000 to support other families and fund research.
“Making every moment an adventure, knowing each one is a gift,” she once wrote. “Thank you for loving her with us.”
